My overall impression is that this should be fixable.....they just don't know exactly how, yet. The heads need to get together and come up with a plan, which hopefully will happen on Monday or early next week.
Billy, the intern, whom I really, really like because we just communicate well together and I feel a sense of trust with him, I told him I was making it his job to get this meeting of the heads thing to happen as quickly as possible. I said: Billy, I'm making it your job to make this happen. Put your foot on the gas and let's get some answers sooner rather than later. I told him that I would do it but I'm used to managing ten kids, so my methods probably aren't professional.
Billy laughed, but his ha-ha-funny laugh turned to a nervous laugh, so I think he took me seriously.
He told me that Finn's neonatal was fully involved, that he had taken over....completly....and now the interns weren't making decisions.....or something along those lines, leaving me with the impression that Finn's doctor is in control and on-task........now......finally.
Which isn't to say that his other doctors weren't, but we finally have one who seems a little more.....serious. Which, I think, is due to several things 1) the amount of time Finn has been there. 2) new information. 3) his personal nature. He is a serious, no messing around kid of guy. He has zero sense of humor. He is infact a little intimidating......but he is also sweet underneath his rough exterior. During our meeting with him on Wednesday he showed great concern for David and I and our other children.....like a sincere concern for all of us and how the life of Finn was impacting us. He didn't have to smile to show care.....his concern and sympathy did that for him, very well.
He's like a rough old grandpa who loves deeply on the inside, but on the outside you must search for the clues to see into his heart. Maybe he's just complicated......just like Finn :)
I did ask the ENT if it woud be possible to do Finn's heart surgery first, let the incision heal from that, and then do the trach? Again, I'm no doctor, but that makes sense to me. He will have to be on the ventilator for the heart surgery anyway, so why not leave him on it, get his heart fixed, and then look at the windpipe issue? It could resolve itself enough by then that he doesn't even need the trach.
And he said that yes, it was a definite possibility that things would go that way.
Like I said, no real answers, but thankfully......it sounds fixable.
Little man was very alert today :). We spent a long time talking and looking deeply into each others eyes...and then he feel asleep on me and I just stayed where I was at, soaking in the magic that is Finn.
It was a good visit today...I felt like I got to see "him." The staff is very, very impressed with how well he tolerated and recovered from his bronch yesterday, which I hope is a good sign for his tolerance of his heart surgery.